LibGuides: Caregivers Resources: ElderCare & Terminal Illness

Books on ElderCare

Who Will Care for Us?: Long-Term Care and the Long-Term Workforce by Paul Osterman
Call Number: 362.1609 OST
Publication Date: 2017
Growing Old in America by Barbara Wexler
Call Number: 362.609 WEX
Publication Date: 2018
Elderhood: Redefining Aging, Transforming Medicine, Reimagining Life by Louise Aronson
Call Number: 362.609 Aro
Publication Date: 2019
Eightysomethings: A Practical Guide to Letting Go, Aging Well, and Finding Unexpected Happiness by Katharine Esty
Call Number: 612.67 Est
Publication Date: 2019
Personal stories illustrate how real people in their eighties are living and how they make sense of their lives. - - Old age is not what it used to be. For the first time ever, most people in the United States are living into their eighties. The first guide of its kind, Eightysomethings changes our understanding of old age with an upbeat and emotionally savvy view of the uncharted territory of the last stage of life. With insight and humor, Dr. Katharine Esty describes the series of dramatic and difficult transitions that eightysomethings usually experience and how, despite their losses, they so often find themselves unexpectedly happy.

The Caregiver's Encyclopedia: A Compassionate Guide to Caring for Older Adults by Muriel R. Gillick
Call Number: 618.97 Gil
Publication Date: 2020
The Caregiver's Companion: Caring for Your Loved One Medically, Financially and Emotionally While Caring for Yourself by Carolyn A. Brent
Call Number: 362.24 Bre
Publication Date: 2021
Everything you need to know to ensure that your older loved one is being properly cared for, from nationally acclaimed author, speaker and caregiver advocate Carolyn A. Brent. People today are not only living longer, they are also living sicker--making aging and caring for older loved ones more complicated than ever before. In this extensive guide, caregiver advocate Carolyn A. Brent outlines a step-by-step process so caregivers know what to do and what to ask in every situation that may arise...
The Carer's Handbook: Essential Information and Support for All Those In a Caring Role by Jane Matthews
Call Number: 362.042 Mat
Publication Date: 2019
The Fragile Years: Proven Strategies for the Care of Aging Loved Ones by Amy Cameron O'Rourke
Call Number: 362.6 Oro
Publication Date: 2021
My Parent's Keeper: The Guilt, Grief, Guesswork, and Unexpected Gifts of Caregiving by Jody Gastfriend; Patrick J. Kennedy
Call Number: 362.6/Gas
Publication Date: 2018
When it comes time to provide care for those who once cared for us, where can we turn? This book offers practical guidance for a broad range of caregiving situations when family caregivers assume their new role. Using the latest research and drawing on case histories and interviews this resource is a source of inspiration with a blend of powerful stories and practical advice that helps caregivers cope with numerous challenges, including:
* Parents who need but refuse help;
* Siblings who don't get along;
* The complexity of healthcare systems;
* Financial issues;
* Juggling work and caregiving;
* The use of technology;
* The power of connecting with a loved one who has dementia;
* Realizing the benefits amid the burdens of caregiving.

A Caregiver's Guide to Communication Problems from Brain Injury or Disease by Barbara O'Connor Wells (Editor); Connie K. Porcaro (Editor)
Call Number: 616.8 Car
Publication Date: 2022
Depression In Later Life: An Essential Guide by Deborah Serani
Call Number: 616.852 Ser
Publication Date: 2016

A Guide to Exercise for Seniors (MattressClarity.com)

Balance Exercises for Seniors: Easy to Perform Fall Prevention Workouts to Improve Stability and Posture by Baz Thompson
Call Number: 613.7 Tho
Publication Date: 2021
Injuries caused by falling can significantly limit an elderly person's independence and prematurely set them up for long-term assisted care. Learn balance-strengthing exercises, risk factors for falls, and other information to reduce risks through improving balance and core strength.

Click on the links below to view titles available in the Mid-Hudson Library System.

Exercise for older people.

ElderCare Organizations & eResources

National Organizations -

Family Caregiving - AARP

National Council on Aging

Caregiving - National Institute on Aging (NIH)

Long-Term Care
Advance Care Planning
Long-Distance Caregiving
Alzheimer's Caregiving

Caregiving - SAGE: Advocacy & Services for LGBT Elders

What Happened to NIHSeniorHealth.gov? - read a brief article explaining why NIHSeniorHealth.gov is no longer working and suggesting health resources for Seniors.

New York State -

Programs and Services - New York State Office For The Aging (NYSOFA)

Dutchess County - DUTCHESSNY.gov

Dutchess County Office For The Aging

Aging Services Directory - Scroll down to Quick Links to access the .PDF (or click on the attachment below).
Adult Care Facilities (Adult Homes, Assisted Living and Nursing Homes) - Click on Housing (listed under Programs and Services) then select Adult Care Facilities (Nursing and Adult Homes).
Senior Citizen Housing in Dutchess County - Click on Housing (listed under Programs and Services) then scroll down to Quick Links to access .PDF (or click on the attachment below).

MyCaringPlan - A website dedicated to helping family caregivers including over 60 extensive content pieces related to caregiving.

Find Senior Living Facilities,
Find Home Care,
or select the Caregiving Resources tab to search by keyword for articles about: Power of Attorney ; How to Get Paid as a Family Caregiver ; 50 Ways for Family to Take a Break and more...

Finding a Caregiver

Finding a Caregiver -

Hiring In-Home Help - Family Caregiver Alliance, National Center on Caregiving, Caregiver.org

How to Hire a Caregiver - Family Caregiving Care at Home: AARP

How to Find and Hire an Elderly Caregiver - Seniorliving.org

Select options listed under the Home Care tab

Caring.com - A detailed guide explaining the cost of in-home care in New York, some of the state-wide financial assistance programs available and other affordable resources offered throughout the state to help seniors maintain independence and quality of life.

Find In-Home Care Options Near Me (Search box) - Caring.com/senior-care

Nursing Home Costs in 2023: How Much Does a Nursing Home Cost? - Seniorliving.org

Find Senior Home Care Near Me - Senioradvice.com

Assisted Living
Nursing Homes
Home Healthcare
All Senior Housing
Resources.

**Scroll down to the map located at the bottom of the page and Select a State to Find Home Care Near You, like Home Care in New York.

Senior Home Care [2022]
provided by SeniorAdvice.com

Inhomecare.com - Find affordable, quality, non-medical caregiver agencies anywhere in the United States.

Accentcare Personal Care New York - Home health aides and personal care aides provide in-home assistance and support needed to make aging at home, independently and safely, possible for those who just need a helping hand. Located in Bronx, Brooklyn, Poughkeepsie and Yonkers.

Hospice, Palliative & Respite Care -

New York State Caregiving & Respite Coalition (NYSCRC)

CaringInfo - National Hospice and Palliative Care Organization

What is Hospice Care? - WebMD

Assisted Living Communities -

Assisted Living Research Institute - Assistedliving.org

Find resources for aging adults by selecting from the RESOURCES tab:
- Assisted Living By State
- Veteran Resources
- Disability Resource

Paying for Assisted Living -

How can I pay for Assisted Living - Aboutassistedliving.org

What are your options? The "most common ways people pay for Assisted Living."
- Search Assisted Living Pricing in Your Area (by State)
- FAQs

Click on the links below to view titles available in the Mid-Hudson Library System.

Home care services.

End-of-Life-Care

"Planning for a Better End of Life: A Guide to Navigating Today's Healthcare System"

After watching the video please take a moment to complete the

Presentation Evaluation Survey.

(25:58)

This presentation covers advance directives (health care proxy forms, living wills, etc.), as well as palliative and hospice care topics.

Created by End of Life Choices New York, funded by the National Network of Libraries of Medicine (NNLM) and the All of Us Research Program.

A New Yorker's Guide to End of Life Planning, Options, and Rights - Created by End of Life Choices New York with a grant from the New York Foundation for Eldercare.

This free guide includes information on:

Advance care planning & advance directives
Palliative care
Hospice
Caregiver Support
Patient rights
End of life options
Also find a glossary, list of resources, and copies of all advance directives referenced in the guide.

A New Yorker's Guide to End of Life Planning, Options, and Rights
Created by End of Life Choices New York, Summer 2022

Being Mortal: Medicine and What Matters In the End by Atul Gawande
Call Number: 362.175 Gaw
Publication Date: 2014
In Being Mortal, bestselling author Atul Gawande tackles the hardest challenge of his profession: how medicine can not only improve life but also the process of its ending.
Medicine has triumphed in modern times, transforming birth, injury, and infectious disease from harrowing to manageable. But in the inevitable condition of aging and death, the goals of medicine seem too frequently to run counter to the interest of the human spirit. Nursing homes, preoccupied with safety, pin patients into railed beds and wheelchairs. Hospitals isolate the dying, checking for vital signs long after the goals of cure have become moot. Doctors, committed to extending life, continue to carry out devastating procedures that in the end extend suffering. Gawande, a practicing surgeon, addresses his profession's ultimate limitation, arguing that quality of life is the desired goal for patients and families. Gawande offers examples of freer, more socially fulfilling models for assisting the infirm and dependent elderly, and he explores the varieties of hospice care...
Aging with Care: Your Guide to Hiring and Managing Caregivers at Home by Amanda Lambert
Call Number: 362.6 Lam
Publication Date: 2018
Finding the right fit to match aging adults with the best caregiver to assist them in their home can be fraught with challenge. In today's pressurized world, the process involves overstressed family members and a shortage of great caregivers. So many adult children are seeking a helping hand and a friendly, experienced voice to guide them through this emotionally charged rite of passage. Aging with Care: Your Guide to Hiring and Managing Caregivers in the Home, takes a personal, professional, and sometimes humorous approach to the challenges, benefits, pitfalls and problems of hiring in-home caregivers. ...
Dying for Attention: A Graphic Memoir of Nursing Home Care by Susan MacLeod
Call Number: GN 362.16 Mac
Publication Date: 2021
When Susan MacLeod accompanied her 90-year-old mother through a labyrinthine long-term care system, it was a nine-year journey navigating a government without a heart in a system without compassion. Her family, much like the system, erected walls rather than opening arms. She found herself involuntarily placed at the pivot point between her frail, elderly mother's need for love and companionship, the system's inability to deliver, and her brother's indifference. She had also spent three years as a government spokesperson enthusiastically defending the very system she now experienced as brutally cold. MacLeod's tone is defined by a gentle, self-effacing humour touched by exasperation for the absurdities and the newfound wisdom around expectations. Dying for Attention is the latest memoir in the graphic medicine field, shelved alongside My Begging Chart by Keiler Roberts and Tangles by Sarah Leavitt. MacLeod includes helpful tips for communicating with nursing homes, as well as background research, to provide a larger context for this under-discussed experience.
Nine Things You Need to Know About the Other "N" Word: Navigating Nursing Homes by Comfort Industries
Call Number: 614.8 NIN
Publication Date: 2017
Demystifying Hospice: Inside the Stories of Patients and Caregivers by Karen J. Clayton
Call Number: 616.029 Cla
Publication Date: 2018

A Beginner's Guide to the End by B. J. Miller; Shoshana Berger
Call Number: 306.9 Mil
Publication Date: 2019
Theirs is a clear-eyed and big-hearted action plan for approaching the end of life, written to help readers feel more in control of an experience that so often seems anything but controllable. Their book offers everything from step-by-step instructions for how to do your paperwork and navigate the healthcare system to answers to questions you might be afraid to ask your doctor...
Planning for Uncertainty: Living Wills and Other Advance Directives for You and Your Family by David John Doukas; William Reichel
Call Number: 346.73 Dou
Publication Date: 2007
It won't happen to me. I'm too busy to worry about a living will. My family will know what to do. No one wants to plan for death or incapacitating illness. But, as the emotional legal battle in the Terri Schiavo case made all too clear, people of all ages need to document and communicate clear decisions about the final details of their lives while they are healthy and have time to fully consider their own values and preferences. ...
The Art of Dying Well by Katy Butler
Call Number: 616.029 But
Publication Date: 2019
A reassuring and thoroughly researched guide to maintaining a high quality of life--from resilient old age to the first inklings of a serious illness to the final breath... The Art of Dying Well is about living as well as possible for as long as possible and adapting successfully to change.
Comforting Thoughts about Death That Have Nothing to Do with God by Greta Christina
Call Number: 128.5 Chr
Publication Date: 2015
A unique take on death and bereavement without a belief in God or an afterlife Accepting death is never easy, but we don't need religion to find peace, comfort, and solace in the face of death. In this inspiring and life-affirming collection of short essays, prominent atheist author Greta Christina offers secular ways to handle your own mortality and the death of those you love.
The Book of Common Prayer: And Administration of the Sacraments and Other Rites and Ceremonies of the Church by Church of England
Call Number: 264.03 Pro
Publication Date: 1892
The Book of Common Prayer by The Episcopal Church
Call Number: eBook available in Hoopla
Publication Date: 2016